Sizing for Wellness

sizingThere are questions concerning estrogen therapy, how it effects bone growth and other issues known and unknown. The idea of “increase mobility thru caregiver” is a comment on the caregiver, not a reason to destroy a child’s growth. “Increase chance of living at home” is 100% under the parent’s control, again, it is not a reason to manipulate and mangle the body of a child.

To what extent does one go to decrease the chance of things that may or may not happen? It is not a given that she will need scoliosis surgery or have bedridden induced infections. Remember, she has NO diagnosis, there is NO history of anyone going through what she will. Bedridden induced infections can easily be mitigated by effective caretaking.

“Physical self closer to cognitive self” is the most outrageous statement. First, the cognitive self cannot be measured since communication may be limited, that is an unknown. Second, there is the claim of an “infant level mentality” so this means that her “physical self” should be closer to an infant? That would necessitate more surgery to “turn back the clock” and remove the physical improvements and growth she has experienced.

5 thoughts on “Sizing for Wellness

  1. “Physical self…..” I too found this to be a very disturbing statement. What does that mean, exactly? Should someone who looks old act old? If you’re a 14 year old genius, should you make yourself up to look like a 50 year old? It’s just so dumb.

  2. The concept of mental age seems to be a key problem in the discussion of Ashley’s “treatment”…while there isn’t convincing evidence that Ashley has intellectual disability, even if she did, “mental age of an infant”/”mental capacity of an infant” is a crude, inaccurate, unacceptable metaphor to explain ID. It’s one of the strangest and most obvious examples of flat-out unscientific dogma you can still find among laypeople (and sadly, even scientists use it at times too…). It’s one of the core concepts used in the oppression of people with developmental disabilities, I’m sure… along with the “empty shell” stereotype, which seems to also be frequently employed in the defense of this mutilation.

    “”mental age” was probably originally intended to express the statistical observation that “people of this chronological age generally score in this range on this particular test”. But then, people took that observation to mean that somehow, brains ideally develop along some kind of linear function, and that people who score lower or higher than their chronological age norm are somehow at an anomalous point on the function. The problem with this is that the function *itself* is a fiction. Development isn’t even fully linear in “typically developing” humans, and like you, I have also seen a person’s supposed “mental age” be used as a basis for denying them rights.” — AnneC in the comments section of the post I linked to

    I have no doubt that Ashley’s parents love their daughter – in fact, I’m sure of it – but they’ve given every indication in the book that they don’t have respect for her personhood. And that’s another key problem.

  3. I completely agree with keeping ashley in a nine year olds body. Im not sure how many of you have personnel experience of disability but I know I do. I am wheelchair bound after a motorbike accident and while I understand that there are hoists etc available i would encourage you to go through the process of being placed in a hoist. It is the most demeaning thing to go through, it is uncomfortable, painful and embarrassing, I would much prefer it if I could have my mother simply lift me out of my chair and into my bed. I suggest all critics need to spend 24 hours as someone less able. Its easy to say we need to change society to make it more accessible, but this is near impossible to do. I have been fighting since day one of being discharged from hospital to get my home town made accessible and the fact is no one cares because it doesnt directly affect them. We are forced to do drastic things to simply be able to carry on living!

  4. I think the way you communicate with redreas is clear and lively,and the story you tell is really engaging and comprehensive.I like the use of these traces of blood to represent drinking alcohol, which helps the redreas distinguish alcohol influence from other non-alcohol sleep very quickly,even without the diagram of alcohol units on the left.However,I was confused at first sight,as the icons that represent the quality of sleep and the time to fall asleep change suddenly.Why not using the same icon to represent one thing?Another thing confusing me is the width of eye.At first I thought the width of eye was decided by the time to fall asleep,but after a while I found that it should be related to the quality of sleep.So I think it would be more comprehensive for redreas if you illustrate aside what the width of eye represents or just use different width of eye to represent them respectively.

Leave a Reply

Your email address will not be published. Required fields are marked *