This is an attempt at justification for the made up category of “Permanently Unabled.” This is NOT a new category of disability as the first bullet claims, it is a name for an undiagnosed and unknown condition. Nothing has shown that survival is only due to recent medical advancements, besides that being a moot point. The term “Pillow Angel” is an attempt to obfuscate and dehumanize these children. They are neither pillows nor angels. They are human beings, persons, children.
There is no proof offered that this constitutes less than 1% of any population, for if it was to have such a statistic, then there would have to be a diagnosis. You cannot claim an unknown is a certain percentage of anything. What is the evidence for this claim? Please back up this number with scientific data. Additionally, are they truly the “most vulnerable of society”? That says volumes about your care for her. She is more vulnerable in your home or in a modern medical facility then poor homeless children living in the street? What is this claim based on? The hospital has admitted that the procedures done were done illegally, they needed a court order which was NOT obtained. Hence, in my opinion, YOU have made your own daughter one of the most vulnerable of our society, a person on whom unprecedented, untested, surgical modifications were illegally performed.
Furthermore, bullet three has the bizarre requirement of “profoundly precious to their families” as part of the definition. Obscene use of “profound” and an obscene requirement of the made up category. The next bullet give the choice of a family’s loving care or getting “warehoused in institutions” as if those are the only choices for any child.
The next bullet alludes to another statistic that is backed up by absolutely no data. Some may believe that increased weight and size is their worst enemy, others believe it is the likelihood of dying of aspiration, stroke or seizure. What is this based on? What study shows this to be true?
Finally, this is identified as an “extreme condition.” No, it is an undiagnosed condition. She may continue through life as she is now, and not need your medical intervention. Individualized options in the hands of parents is not always an option. That is why we have family courts, social services, and laws to protect children.